About The Dystonia Society
The Dystonia Society was established in 1983 by a small group of people affected by dystonia, and the aims and mission of those original founders are the core of our work today.
Our mission is a world without dystonia. To achieve this mission, we aim to support and advocate for people living with the impact of dystonia to ensure they experience the best quality of life for all of their life whilst we drive forward towards critically needed treatments and ultimately a cure.
We do this by:
- raising awareness of all forms of the debilitating set of conditions known as dystonia
- by supporting and advocating for those affected by a diagnosis of dystonia through our support and advocacy services and local support group network
- by facilitating research into critical advances in treatments and ultimately the search for a cure.
The Dystonia Society was formally registered as a charity (no. 1062595) in 1984 and also as a company limited by guarantee (no. 3309777). The Board of Trustees are elected by the membership of the charity and the Society has a Staff Team to carry out the day to day work of the organisation.
How to take part for Charity
For more details of how fundraising works please read our step by step guide here or contact us for help.
Maximum Adventure work with lots of charities to offer our events as fundraising opportunities. You can find our Charity Events from the ‘Menu’ in the corner of your screen or from our homepage. If your chosen charity is not listed, please contact us and we will be happy to approach them on your behalf.
With the self-funding fundraising method, you personally cover the full cost of the challenge. This option means that there is no minimum sponsorship target due, but we encourage you to raise as much money as you can for the charity.